Where people with MS, caregivers, and professionals get and give advice.
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MS fatigue is like no other. It is like weather reporters out in hurricane force winds. It takes their whole body to stand straight, they are pummeled with more wind ... read more
PA
Living with Relapsing-Remitting MS Age: 58 Female More than 5 years
29
Since I adapted my eating cycles to my MS, I get much more done. I'm heavily affected by the amount, rate, and time I eat, but nutrition is of course necessary. Wher ... read more
Living with Relapsing-Remitting MS Age: 30 Male More than 5 years
3
QUESTION OF THE DAY:
What’s one gadget you love and think other people who have MS should know about it?
I quit my stressful job after 20 years as an LPN. I haven’t felt this great since! Now, I care for me.
Living with Relapsing-Remitting MS Age: 49 Female More than 5 years
11
I look into and try many different therapy techniques and natural products. I’ve enjoyed salt therapy and it helps tremendously with sore muscles and to help relieve ... read more
Autumn Grant
Living with Relapsing-Remitting MS Age: 27 Female 1 to 5 years
2
Always try and never quit
Living with Relapsing-Remitting MS Age: 58 Male More than 5 years
7
I often wonder how to help my family members understand what MS feels like, but it’s hard for them to get it. So I put together an activity I called the ‘MS CHALLENG ... read more
Living with Relapsing-Remitting MS Age: 65 Female More than 5 years
45
Don't fight it ... take it easy on yourself. There are so many different ways to cope. Some days it might be exercise. Some days it might be just leaving the house. ... read more
Jill
Living with Relapsing-Remitting MS Age: 48 Female More than 5 years
5
Track your symptoms in relation to your diet; this will help you understand what foods make symptoms worse and what you should avoid.
Brittany Ferri, OTR/L, CCTP
Founder Simplicity of Health, LLC, Rochester, NY Healthcare provider for Multiple Sclerosis Age: 27 Female
2
The Squatty Potty has been helpful.
Living with Relapsing-Remitting MS Age: 49 Female More than 5 years
5
I remember reading a quote that went like so, "move while you can and move for those that can't". I say this to myself occasionally to get myself going, along with, ... read more
Living with Relapsing-Remitting MS Age: 36 Male
3
One strategy I use to deal with MS symptoms is exercise. I’ve found it sort of helps everything: As you begin to move more, you breathe more deeply, you have more ox ... read more
Cherie Binns, RN
Living with Relapsing-Remitting MS Age: 67 Female More than 5 years
5
Be sure you have a reliable employee advocate in your company's HR department. My manager is completely unsympathetic to my inability to keep up with productivity me ... read more
Living with Relapsing-Remitting MS Female More than 5 years
5
If you have MS and wish to get pregnant, you will need to discuss this with your neurologist and your obstetrician, and ideally work with a high risk obstetrician. Y ... read more
Dr. Maria Vila, DO
Healthcare provider for Multiple Sclerosis Female
0
Fast Fact
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.
Neurology
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.Exercise, specifically Taoist tai chi, has given me my life back.
Guesna Dohrman
Living with Relapsing-Remitting MS Age: 71 Female More than 5 years
18
Listen to your body. If it says to rest, then rest. If it says it's a good day...have a good day!
Trevis
Living with Secondary-Progressive MS Age: 52 Male More than 5 years
1
Overheating exacerbates of lot of MS symptoms in some people (including myself). The best thing I do is just use layers that I can slowly shed throughout the day. Ev ... read more
Julie Blackburn
Living with Primary-Progressive MS Age: 40 Female 1 to 5 years
2
Poll
What’s the best thing you’ve done to manage MS at work?
Slow down and breathe. If the right word does not come, move on, and it generally will result in the sought after word/answer/thought.
Slowing down and remaining ca ... read more
Living with Relapsing-Remitting MS Age: 49 Female 1 to 5 years
4
When traveling: Get everything prepared the night before. Allow yourself extra time the day you depart and always wear comfortable clothing and sneakers. It's also i ... read more
Nichole Chobin
Living with Relapsing-Remitting MS Age: 47 Female More than 5 years
5
Do deep breathing exercises
Living with Relapsing-Remitting MS Age: 68 Female More than 5 years
3