Where people with ITP, healthcare professionals, and caregivers get and give advice.
Sort By:
SELECT ONE
POPULAR TOPICS:
If you are healthy, consider donating platelets. People with a variety of blood disorders, including ITP, often need platelets when they aren't making enough of thei ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
Exercise is essential, but you need to be very aware of the risks associated with falling or getting injured. I advise working with a physical therapist or occupatio ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
QUESTION OF THE DAY:
Stress, anxiety, and other emotions can go hand-in-hand with ITP. What’s your coping strategy?
It’s important to be a very cautious driver because a car accident is likely to be more dangerous for someone with ITP.
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
ITP knocks down platelets … people who have been diagnosed with ITP always want to know how to make more platelets….but you can’t really eat more papaya (or any othe ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
5
Common signs of low platelet counts (ITP) are frequent nosebleeds, blood blisters in the mouth, easy “bruise-ability” (black and blue marks), and a petechial rash (t ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Stay away from risks that could lead to injury.
Living with ITP Age: 39 Male More than 5 years
3
If you have a bleeding disorder, don’t take over-the-counter medication like aspirin or NSAIDs (like Motrin) because they can inhibit platelet function and make blee ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>Other people around you really need to know about your ITP, especially when it comes to emergency situations when you can’t speak for yourself. Your friends should k ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
6
There are data that suggest your immune system is not what it should be if you don’t get enough sleep. Getting enough sleep is part of a healthy lifestyle.
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
4
Be aware that some supplements, such as fish oil and curcumin (turmeric), can thin the blood; if you have ITP you may need to avoid them.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
4
Many people who have bleeding disorders, including low platelet counts, don’t require any therapy. For those with low platelet counts, you should, however, make sure ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Pacing myself. I make sure I do not have a lot to do in one day and try to space out my daily tasks. I think it helps to also schedule few moments to rest.
Sue
Living with ITP Age: 32 Female
1
If you have ITP, the most important thing you can do is tell your healthcare provider about every medication you take -- including supplements and over-the-counter m ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
If you have frequent nosebleeds that last for more than 15 minutes you need to see an ear, nose, and throat specialist. Frequently, these nosebleeds are not from eas ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
When my patients ask, I say, not facetiously, look both ways before crossing the street. I think that is good advice whether one’s platelet count is low or normal. A ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
We got my son a medical alert bracelet so if anything happens paramedics will know of his condition.
EvanJace
Care Partner for ITP Age: 30 Female
5
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>Medications like aspirin or ibuprofen, and some supplements like fish oil, alter the way platelets work, and so they can potentially put someone at increased risk fo ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
I was diagnosed with ITP at the age of 12, and since then I have been living with this rare immunity disorder. So here I am to share a few tips with the brave hearts ... read more
Ipsita
Living with ITP Age: 20 Female
2
Poll
Does food help you manage ITP?
Meal planning and meal prep are so important for people with ITP. I recommend “Meal Prep for Beginners” by Toby Amidor, MS, RD, CDN and my book, too, “The Anti-Infla ... read more
Ginger Hultin, MS, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3