Where people with ITP, healthcare professionals, and caregivers get and give advice.
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Many people who have bleeding disorders, including low platelet counts, don’t require any therapy. For those with low platelet counts, you should, however, make sure ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Some of the most common signs of ITP (low platelet counts) are frequent nosebleeds that last for more than 15 minutes. If this is the case, call your doctor.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
QUESTION OF THE DAY:
What’s on your ITP grocery list? Share your tips if food or supplements help you stay on top of your health.
Be consistent
Paul
Healthcare provider for ITP Age: 55 Male
2
If your general practitioner has diagnosed you with a bleeding disorder and you live in a place where it’s hard to find a hematologist, you can get the care you need ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
If you have a lot of stress in your life, commit to exercise and a mindfulness practice.
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Exercise is essential, but you need to be very aware of the risks associated with falling or getting injured. I advise working with a physical therapist or occupatio ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
If you have a bleeding disorder, don’t take over-the-counter medication like aspirin or NSAIDs (like Motrin) because they can inhibit platelet function and make blee ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>Open up about about ITP. Many people don't know what ITP can do to a body so it's good to speak about it. Also helps you in the future.
Sue
Living with ITP Age: 32 Female
1
I’m a huge fan of educating yourself to really understand what’s going on. I think it makes you more susceptible to complications if you don’t have awareness of what ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
If you are healthy, consider donating platelets. People with a variety of blood disorders, including ITP, often need platelets when they aren't making enough of thei ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
When you’re cooking or preparing food, take your time, move slowly, be aware when you have sharp utensils in your hands. Think about what sorts of things you can do ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Common signs of low platelet counts (ITP) are frequent nosebleeds, blood blisters in the mouth, easy “bruise-ability” (black and blue marks), and a petechial rash (t ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Exercise! It helps with stress management and prompts your body to produce anti-inflammatory cytokines.
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
1
When my patients ask, I say, not facetiously, look both ways before crossing the street. I think that is good advice whether one’s platelet count is low or normal. A ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
It’s important to be a very cautious driver because a car accident is likely to be more dangerous for someone with ITP.
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
Please take care of yourself -- this disorder makes you ill 🤒. I recommend an ITP DIET. Avoid processed food and choose forest-grown and field-grown food.
SYED MUZAFFAR
Care Partner for ITP Age: 23 Male
6
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>With any autoimmune disorder, including ITP, it's really important that we know all the medications and supplements you are taking. There is a hesitancy to share thi ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Drink lots of water and meditate.
chelle
Care Partner for ITP Age: 31 Female
4
Poll
Does food help you manage ITP?
Keep over-the-counter nosebleed treatments on hand.
Living with ITP Age: 51 Female
5