Where people with ITP, healthcare professionals, and caregivers get and give advice.
Sort By:
SELECT ONE
POPULAR TOPICS:
Tell your healthcare provider about any changes in your body, like changes in bowel movements or an increase in headaches, joint pain, or fatigue. These can help us ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
Having a good foundation of wellness and nutrition and managing stress is essential for anyone who has an autoimmune disease like ITP because all lifestyle issues im ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
3
QUESTION OF THE DAY:
Feeling ITP fatigue? What tips help you get through the day?
Be careful not to bump into doorways, sharp corners, etc. Having ITP means it's easy to bruise. I have found that "rubbing" the spot if you bump it does help. The ol ... read more
Care Partner for ITP Age: 90 Female
4
The more varied your diet is, the better. More variety in your diet provides a healthier, more diverse microbiome, which provides a healthier immune system, and the ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
2
Some of the most common signs of ITP (low platelet counts) are frequent nosebleeds that last for more than 15 minutes. If this is the case, call your doctor.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Be patient with your body! With any autoimmune disease flares can happen any time the immune system is stimulated -- even something like a flu shot can aggravate the ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
If you have a low platelet count, I don’t think it’s the best thing to go out and play tackle football. At the same time, even if your platelet count is very low, th ... read more
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
4
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p> If you have a child with ITP who is also a picky eater, consider meeting with a dietitian who can help with meal planning.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
It’s important to be a very cautious driver because a car accident is likely to be more dangerous for someone with ITP.
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
Enjoy life and think less of your illness.
Rosel
Living with ITP Age: 18 Female More than 5 years
3
Try to plan the day in advance and have moments for rest scheduled
Sue
Care Partner for ITP Age: 32 Female
0
When you have an attack on your platelets, which is what ITP causes, be aware that there are activities you should avoid -- like riding motorcycles, playing rugby, a ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
1
I’m a huge fan of educating yourself to really understand what’s going on. I think it makes you more susceptible to complications if you don’t have awareness of what ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
If you are healthy, consider donating platelets. People with a variety of blood disorders, including ITP, often need platelets when they aren't making enough of thei ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
Take a nap, and drink at least 6 oz of water everyday.
Living with ITP Age: 70
0
Keep over-the-counter nosebleed treatments on hand.
Living with ITP Age: 51 Female
5
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>If you’re constantly anxious, your immune system is not going to be working at its best. And we want the immune system to be as calm and regulated as it can be, beca ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Get all the sleep that you can! Stick to a sleep routine even if it might be a burden and disrupt aspects of your life.
Living with ITP Age: 61 Female
3
Poll
Does food help you manage ITP?
My son has chronic ITP and when his platelet numbers are under 70,000, we are very cautious about activities that he could potentially get hurt from. When that is th ... read more
EvanJace
Care Partner for ITP Age: 30 Female
4