Where people with ITP, healthcare professionals, and caregivers get and give advice.
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It has been two years since my son's diagnosis and he is now considered a "chronic ITP patient." This has been a life-changing event for my son as well as for my hus ... read more
EvanJace
Care Partner for ITP Age: 30 Female
3
carry a lot of tissues.
Sue
Living with ITP Age: 33 Female
0
QUESTION OF THE DAY:
Feeling ITP fatigue? What tips help you get through the day?
If you have ITP, carry a medical alert card in your wallet that says what you have and whom to contact in case of emergency. If you're not someone who has a wallet w ... read more
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
3
Make sure to eat on a regular schedule; no intermittent fasting! Regular, steady intake of balanced meals (think: protein, whole grain carbohydrates and unsaturated ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Age: 38 Female
4
Try to plan the day in advance and have moments for rest scheduled
Sue
Care Partner for ITP Age: 32 Female
0
My son has chronic ITP and when his platelet numbers are under 70,000, we are very cautious about activities that he could potentially get hurt from. When that is th ... read more
EvanJace
Care Partner for ITP Age: 30 Female
4
Common signs of low platelet counts (ITP) are frequent nosebleeds, blood blisters in the mouth, easy “bruise-ability” (black and blue marks), and a petechial rash (t ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>Open up about about ITP. Many people don't know what ITP can do to a body so it's good to speak about it. Also helps you in the future.
Sue
Living with ITP Age: 32 Female
1
Meal planning and meal prep are so important for people with ITP. I recommend “Meal Prep for Beginners” by Toby Amidor, MS, RD, CDN and my book, too, “The Anti-Infla ... read more
Ginger Hultin, MS, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
If you have a bleeding disorder, don’t take over-the-counter medication like aspirin or NSAIDs (like Motrin) because they can inhibit platelet function and make blee ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
If you've been diagnosed with ITP, talk with your healthcare provider about screening exams for H. pylori, shingles, and hepatitis C, as infections like these can tr ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
1
If you have a lot of stress in your life, commit to exercise and a mindfulness practice.
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Be aware that some supplements, such as fish oil and curcumin (turmeric), can thin the blood; if you have ITP you may need to avoid them.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
4
Check blood counts often.
Living with ITP Age: 39 Male More than 5 years
4
If you suffer from frequent nosebleeds, running a humidifier and using saline (salt) nasal sprays to moisten the nasal lining can help reduce the frequency.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Be patient with your body! With any autoimmune disease flares can happen any time the immune system is stimulated -- even something like a flu shot can aggravate the ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>If your general practitioner has diagnosed you with a bleeding disorder and you live in a place where it’s hard to find a hematologist, you can get the care you need ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Enjoy life and think less of your illness.
Rosel
Living with ITP Age: 18 Female More than 5 years
3
Poll
Does food help you manage ITP?
Pacing myself. I make sure I do not have a lot to do in one day and try to space out my daily tasks. I think it helps to also schedule few moments to rest.
Sue
Living with ITP Age: 32 Female
1