Where women with endometriosis, professionals, and caregivers get and give advice.
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Don't waste your time and energy with someone who is not informed about endo. If you don't know what excision or proper treatment is, join a Facebook group like Endo ... read more
B
Living with Endometriosis Female More than 5 years
3
I tell friends: If you have painful periods, heavy periods, cramps when you are not on your period and/or painful sex, SEE YOUR GYNO. As women, we tend to talk about ... read more
Rebekah
Living with Endometriosis Age: 44 Female More than 5 years
6
QUESTION OF THE DAY:
What do you do to ease endo pain?
Eat on a regular basis. For me, having an empty stomach produces gas and pressure around the pelvic area.
Living with Endometriosis Age: 34 1 to 5 years
5
Don't rely on your regular gynecologist to diagnose/treat your endometriosis. Be persistent and get to the best doctor you can, even if you have to travel. So many e ... read more
Jen
Living with Endometriosis Age: 46 1 to 5 years
9
Find a doctor who cares -- a specialist who 100% understands endometriosis! And don't be afraid to be your own advocate! If you feel belittled or unheard, find a new ... read more
Shawna
Living with Endometriosis Age: 26 More than 5 years
2
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I always start out by asking new providers if they're familiar with endometriosis. I say, "It's ok if you're not" and/or ask if they've treated many patients who hav ... read more
Shannon
Living with Endometriosis Age: 34 Female 1 to 5 years
5
Don’t settle with someone telling you, "It's normal." Don’t accept a range of pain meds without questions. Everyone is different, so you have to listen to your body ... read more
Kerry
Living with Endometriosis Age: 37 Female More than 5 years
4
Poll
What’s your top strategy for managing endo pain?
Excision surgery was painful (I had lesions everywhere, on my colon, rectum, ovaries) and recovery took a week of bedrest, but my life has been changed. I used to ha ... read more
Meg C
Living with Endometriosis Age: 27 More than 5 years
2
Educate yourself and keep pushing for answers. Don't give up!
DJB
Living with Endometriosis Age: 35 1 to 5 years
2
Aerobic Exercise for 1 hour, 5 times per week can help manage pain and help you maintain energy levels.
Dr. GTR
Healthcare provider for Endometriosis Age: 58
3
The first "treatment" I was offered for endometriosis was birth control pills ... and opiates. I didn't want either because based on what I know, those options weren ... read more
Brittany Ferri, MS, OTR/L
Living with Endometriosis Age: 27 Female More than 5 years
3
Birth control pills and nonsteroidal anti-inflammatory drugs can help control the pain associated with endometriosis.
G. Thomas Ruiz, MD Healthcare provider for Endometriosis Age: 58
2
Your pain is real, whether or not people close to you recognize that.
Mary
Living with Endometriosis Age: 32 Female More than 5 years
3
I've found that, in the healthcare system, things do not go well when I show anger. When I show doctors I'm reasonable and I've done my research, I'm more likely to ... read more
Kristina C.
Living with Endometriosis Age: 38 Female More than 5 years
4
Many women with endometriosis have pelvic issues, as the pelvis is the seat of the reproductive system. I've found the yoga poses that focus on opening the hips ease ... read more
Brittany Ferri, MS, OTR/L, CLT
Living with Endometriosis Age: 27 Female More than 5 years
5
Get information about endometriosis and be aware of any change in your body. Believe in yourself when you find something strange and share your thoughts with a relia ... read more
Living with Endometriosis Age: 28
0
Fast Fact
1 in 10 women has endometriosis, making it almost as common as diabetes.
Endometriosis UK
1 in 10 women has endometriosis, making it almost as common as diabetes.Spray magnesium oil on your abdomen and eat healthy! Your diet matters. Also, get checked for SIBO, as it's common to have along with endo.
Living with Endometriosis Age: 33 Female More than 5 years
0
My endometriosis podcast: The Cycle https://podcasts.apple.com/us/podcast/the-cycle-endometriosis-podcast/id1448598831
Melissa B
Living with Endometriosis Age: 40 Female More than 5 years
7
Keep a diary and get specialized help based on your symptoms. Period pain that interferes with life is not normal. Don't risk your fertility by delaying diagnosis an ... read more
Judy
Living with Endometriosis Age: 58 More than 5 years
4